Monday, November 7, 2022

This is a note from a friend of a friend. I'll use no names to respect the privacy of all concerned. I just thought it important to record and save this personal missive from one about to leave us. And yes, it is cruel to keep person here against their will. They use all the tech they can to keep you alive. However not a thought to the quality of that life.

She writes ...I don’t know if I will keep posting. It is becoming increasingly difficult. If I do, it will likely be just a brief thought without a picture as todays post is. I spend more of my days napping. In anticipating my death, I had not imagined a long time of diminished capabilities during which my interests and books are not companions because of an inability to read much or communicate. I’ve learned that it is not possible for someone who has never been seriously dependent on others for help even with something like opening a bottle or package to imagine what the decline to death is like.

But I remember this is all just what it is—objective. My opinion is that it is unfortunate. My mood is accepting, but I wish death not to linger as I am ready. I regret that euthanasia is not possible for it is needed not just for pain (which I am not plagued by--yet anyway) but severe, growing disability.

This post is clearly for those who wanted the truth of my journey. The truth is that it is harder than I imagined as I did not imagine the loss of even basic capabilities like reading and doing simple tasks without help. And when there is no help available there are things that wait until help is available. When they shouldn't wait, they will still have to and there are limits to what friends can do or can be asked to do. They are not caretakers.

2 comments:

  1. Very sorry to hear about this. Personally, I fear debility more than death.

    Z

    ReplyDelete
  2. Last summer when I collapsed in my hallway. I was helpless. Couldn't even crawl. In time I felt systems re-booting. This has happened twice. I didn't fear this might be my end. I have for reason uncertain never feared that. However helpless...

    My ma as part of her death spiral endured a stroke. Helpless...totally and completely. It is the ultimate cruelty. Still, they insisted on using their machines to continue her suffering. To my shame because of fear of losing her we all let them. She just wanted to come home so she could die in peace. This was a great lesson for which I'm grateful to her for.

    You may remember a few years ago when it looked like I might cancer. They were all set to put me into their agony machine. I agreed to invasive testing. However, told them if the found something I was going home. I refused to let them radiate and cut me up. I would not let them hook me to their slow death machines. I just wanted pain management nothing else...other than to go home. I was told this was an unhelpful attitude. I replied: "...for who?'

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